Livvy Lou

I was going to do another "cut and paste" from CaringBridge, but that wouldn't be fair two days in a row! Olivia had a good day - no true "setbacks" when it comes down to it. She did gain 2 new medications, increased some, decreased none, lost one, added a machine or two, had an echocardiogram, added a PICC line (a more long-term IV access), gave her some platelets, adjusted the ventilator, turned off her paralytic - should I go on...
It was a long, big day.
Even with all the changes, it seems like we may be finding her "happy medium." She is tolerating being off the paralytic much better this time. It is so great to see her move her feet, hands, and toes again. We still haven't seen her open her little eyes yet, but that will come soon enough, I'm sure. She still needs some time to rest. Her chest x-ray looked much better today. Her lungs were a little over-inflated, but some of the changes should address that. By the end of the day, her heart rate, blood pressure, and oxygen saturations were all status quo. The docs were happy to finally see some stability.
I talked with Dr. Al from St. Jude for a long time. Of all the info he had to share, I got this from it: he will do the bone marrow biopsy during this hospital stay once she is stable enough to do so. He will draw bone marrow from 2 locations and have some results that day and others in 3-5 days from the procedure. He is still confident there is no leukemia. All the other stuff went right over my head.
Oh, she is also getting feeds in her belly. She is up to 25 ml of milk an hour (that's equal to 5 teaspoons an hour).
I'm sure I'm forgetting lots since so much seemed to happen today. One of these days when things slow down, I'll let you know what those things were! Please pray for a peaceful night. We don't want to have to restart the paralytic, so she needs to stay calm. I'll update more tomorrow afternoon, unless something huge happens before that!