The waiting game.

Well, Olivia woke up this morning happy as a clam, but her petechiae (those little dots all over her face) have gotten worse. As of last night, her St. Jude doctor had not called our pediatrician back, so we were still waiting to hear back. That's still the case! (sense the frustration?) Anyway, she got a shot in both legs this morning for her synagis (RSV shot). Then to the pediatrician's office for a Protime/INR finger stick (that bled for 1 hour and 20 minutes) and then to the hospital for a CBC (however, they were able to use the same finger, since is was still bleeding!) But, because of the bleeding we thought it wouldn't hurt to go ahead and have the lab draw a Protime, which required another stick, actually two, and they never got any blood. That was pointless.
Now we are just waiting to hear back from someone, somewhere, to let us know what to do from here. Her platelets did go down again and I would love to know why. On a bright note, we have an appointment set up with the pediatric surgeon in Peoria for Tuesday afternoon. The ENT in Peoria is saying they won't take Olivia because she doesn't live within 20 minutes?!? Never heard that one before, so we'll see where that goes.
Anyway, just a little update on our day! She definitely loves to keep us on our toes!