Par for the course...

Olivia is still doing awesome! She's come down a bit more on her epinephrine drip and on her vent. There is a goal to get the Dopamine off by morning?!?
Zac and I both say that it is always so much harder to see her with all these tubes and lines when she hasn't had a heart surgery. Her record last year after her mitral valve replacement was 14 pumps. We are at 12 or 13, along with the vent, nitric oxide, a catheter, a central line, an arterial line, and a PICC line. She definitely doesn't mess around, huh? It will be nice when they start removing things one by one.
So, why the title of "par for the course," you ask? Brooklyn and I started out for Galesburg for a birthday party today. She just kept saying she was so tired and so cold. You guessed it - fever. So, after lots of tears, we turned around and went back to Grandpa and Grandma's for a nap. Luckily, after a nap and a bit of Tylenol, she was feeling much better. Hope you had a great party, Alaina!
My newest adventure...I'm going to try to learn to crochet. It seems like it would be a really good hospital hobby. Yesterday at "mommy conference," one of the vendors had the most adorable little crocheted beanie hats. They would be perfect for Olivia once she starts her chemo, so I thought it would be fun to give it a go. I'll keep you posted on the progress.
Thank you so much for the continued prayers. I love reading all the comments. Today there is even one from someone who said they found a link to our site from someone else that we don't even know. There are people all over the country praying for her and it means more than you know! So, continue to leave comments! We love knowing who you are and where you are from! It continues to amaze me and makes us feel so unbelievably blessed.