I got a smile!

Good report and good goals for the day. I came in this morning and Olivia was just waking up. She had a great night. They had to pull her TP (feeding tube). It was causing her to gag and vomit, so the nurse practitioner finally pulled it. Then she ended up sleeping on through the night. Once she woke up a little bit, I sat her up and she clapped and smiled at me!! Woohoo!!
She definitely looks much better and her numbers are reflecting that as well. So, the goals for today are:
1. Get her nitric oxide down to 1 by tomorrow morning.
2. Get her high flow down to 4L by this evening.
3. If goal #2 gets met, then try to feed her and avoid replacing the TPT.
4. Get labs drawn.

So, mom's interpretation of the bone marrow results weren't too far off. There are no signs of abnormalities in the bone marrow itself. The bone marrow is healthy. There may be abnormal red blood cells in the blood itself. So they need to run some labs to determine if this is the case. This can't be done until she has been transfusion-free for a month or two.
It seems to me that everyone is in agreement that Olivia will probably go home for 3-4 weeks and as long as she stays healthy, they will do the heart surgery then, however, this is all just my speculation.
Her chest x-ray looks better and she is still receiving her antibiotic. All cultures have looked good, as well. So, pray for all our goals to be met today and we'll be heading in the right direction!