So, I just visited with Dr. Al from hematology and I really think I understand the blood stuff. So here is the scoop.
They are confident that her bone marrow is healthy. They are confident that it's not an immune disorder. There is definitely red blood cell breakdown. One of the doctors was able to put the possibilities in to my terms. So, picture a jelly doughnut. The jelly doughnut is a red blood cell. The doughnut and the jelly are filled with enzymes. One possibility is that some of her doughnuts may be shaped like a ball instead of flat. Another possibility is that the enzymes in the doughnut are abnormal. The final possibility is that the jelly is abnormal. So, a lab test can be conducted to determine which of these three possibilities Olivia has. However, each of these possibilities branches off into many more possibilities. It's just a matter of breaking it down to the specific thing that causes her hemoglobin to drop. There is no treatment. We will just need to watch for signs of anemia, avoid stress and illnesses (easier said than done, obviously), and then be able to manage her anemia. It may require frequent transfusions, but not necessarily. There is no rush to finding a source. It takes 2-3 months for borrowed blood to completely leave the system. If they do her surgery in a month, we will obviously have to wait a while to do any labs. So, we are going to put the blood situation on the back burner for now and concentrate on her heart and lungs.
Sorry about all the info about the blood. I just wanted to document it before I forgot. It may be rather repetitive.
5 years ago
1 comments:
Thanks for putting it in layman's terms. That makes more sense.
Kristen
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