One of these days, we are just going to have a normal run-of-the-mill day, and people are going to think something is wrong.
Olivia woke up at about 2 this morning with a massive bloody nose. It seemed to stop for a while, but then started trickling again...until about 1:00 this afternoon. Along with this, her eye actually started to bleed. Gross, I know. It was really strange. There was literally blood everywhere. So, to the lab for a CBC this morning. Low platelets. Back to Peoria.
Olivia got a platelet transfusion and slept through the entire thing (besides getting the IV started). Also during her visit, we established a pretty good game plan for next week. It's going to be another big one. First of all, we will most likely go in sometime this weekend for some more platelets since she doesn't seem to be holding on to them for more than 48 hours. Then on Tuesday afternoon, Olivia will be admitted to the hospital, get any transfusions she needs, and get ready for a big day on Wednesday! She will be getting her G-tube (no Nissen necessary - no signs of reflux), a central line put in (no more pokes!), have her bone marrow aspiration done, and possible get tubes put in her ears (if the ENT is available). It will be so nice to get this all done in one shot and get some answers (hopefully) from the biopsy. She will most likely be in for 2-3 days.
The downfall of all of this....we had to stop her coumadin (blood thinner) and start her on Lovenox injections. You may remember way back when I had to give her these shots at home and how hard it was for me. This time around, I gave her the first injection tonight and she didn't even cry! She's such a big girl! Anyway, we switched to prepare her for surgery, but she will most likely continue afterwards for a while as well.
Tonight the girls and I are staying at my parent's house because Olivia has to have a lab drawn in Peoria in the morning. The boys are holding down the fort at home and trying to get some sort of order. We left the house in quite a disarray. We are hoping for a semi-quiet weekend, but aren't getting our hopes up!
5 years ago
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