Sleepyhead.

I've only seen the whites of Olivia's eyes twice today. She is soooo sleepy. I know she had a big night on Saturday, but she slept quite a bit of yesterday and pretty much all night last night. Hmmmm. She's also starting to get quite puffy from all the fluids she's receiving, so I've requested some IV lasix to get rid of some of the extra fluid (thanks friends =) you know who you are!!) Dr. Smith from St. Jude is doing in-house patients today, so we haven't seen Dr. Al. He said we may have to postpone Wednesday if her blood doesn't level out. With the decreased dose of Lovenox, her Prothrombin time (the amount of time it takes your blood to clot) is low. It was high. So, they are going to tweak her Lovenox again and hope that helps.....
Well - in between that last sentence and this one, Olivia had some visitors! Her PICU doctor and nurse practitioner stopped by to visit and thought she didn't look so hot either, so they are going to keep an eye on her. They also requested that her cardiologist stop by to peek at her. Whew! I feel better already. It's very new for us to be here under the care of St. Jude. Don't get me wrong. They are absolutely amazing at what they do. But, Olivia has so many underlying issues. Her heart. Her respiratory issues. Pulmonary Hypertension. The list goes on... So it's nice to have someone to monitor her overall care. Within the last 30 minutes of getting her IV diuretic, she sat up, ate, smiled, pinched my face, and watched a bit of Barney. Lasix is good, but God is better! Thanks for praying.