Prayer requests...

So, our time at home didn't quite work out as planned. Olivia had a really good night last night, but then took a turn for the worse today. She had quite a few pulmonary hypertensive episodes this morning that weren't precipitated by anything at all. Around 11:30 or so, she dropped her oxygen saturations into the 30's. From then on, she fluctuated between the 50's and 60's. They did start her on IV Flolan, which is for pulmonary hypertension. She gets it now through her ventilator, but they thought she may not be absorbing it completely. They started the IV Flolan, but she seemed to get worse. Around 3:15, they turned off the IV Flolan and turned her to her belly. Since then, she has slowly come around and is doing so much better now - just dealing with lower blood pressures.
Zac is on his way here and we are going to have a family meeting about Olivia's care. We need to make some really hard decisions about how much is too much, and how far we would want them to go in these kinds of situations. I don't think it's going to be a fun meeting whatsoever, so I'm asking for some specific prayer requests for that.
Also, Brooklyn's end of year picnic is tonight - the other reason I was home. We had a really good day today and I told her I would try really hard to make it back tonight. Now, neither Zac or I will be there which is killing me. My mom headed out to go to Macomb and take the kids, which they will be so excited about. I just wish we could all be there. I also ask for prayers that I won't be overcome with guilt and that Brooklyn will have a wonderful time with Grandma and Jack!
Keep you posted...