Monday, October 27, 2008

Marathon day

Another marathon day of doctor's appointments. Here's a quick run down:

St. Jude - blood counts are great. Hemoglobin 12.7, Platelets 154,000, and I don't remember her Hematocrit count...all I know is there was a "H" by it for High. We'll take that! All is well there except that her doctor went to Syria with his wife and two children last month and Homeland Security won't let him back in the U.S. So, a different doctor for awhile. Do they not realize this man is saving lives? Anyway, good report - I don't know when we have to return for a follow-up.

Dr. S (Cardiology) - wonderful report. She sounds great, looks great, and has gained a whoppin' 5 pounds since he saw her in August! We go back in 4 months for an Echo with hopes of being able to wean down some meds (and possibly her oxygen?!?)

Dr. F (Cardiac Surgeon) - good report. Possible hernia at one of her chest tube sites, but just something we'll keep an eye on. Labs next Monday and a quick stop by the office for a blood pressure and heart rate check! Otherwise, we'll keep contact via phone to reduce trips back and forth! Yippee!

On a side note...Olivia has mastered a couple of two-word phrases. She now can sign "more" and "all done," and has possibly been spotted signing "more please" along with patting her food and then signing "more." She's so polite. Just a little tidbit of information to brighten your evening.


Anonymous said...

Two word phrases!!!YYYEEESSSSSS!! Olivia, you ROCK!

Judy said...

Wow, what a great report! How exciting would it be to actually get rid of a few meds?!! She is doing so well, we're just really going to pray that she stays healthy this winter. Does she still get an RSV vacine or is she past that? And the signing is very exciting!! I'm sure she's thrilled to be able to communicate and it's got to be exciting for all of you to see!

Anonymous said...

So glad to hear you are all well!
We think of you often! I have been meaning to let you know that I got a calendar. How wonderful it was to see Olivia on those pages! They were beautiful! Keep up the good work with all you do at home! You are an amazing mom, Julie and you are sure allowed bad days too. Don't ever feel bad when you have one. Just remember there are many of us praying for you daily!
Jen Weber

Anonymous said...

Hello all,

Miss you guys and grandma too.... so glad to hear you are enjoying life at its finest!!!

Hope to continue reading fun things.

Love you all... big hugs and a big kiss for miss livvy

Ann (PICU)