Friday, February 27, 2009

Frustrated.

I'm beyond frustrated today. I know it's because I'm tired. And when I'm tired, I get all emotional. But...the on-call surgeon came in and said there is still too much drainage from Olivia's g-tube. So, she wanted to clamp it off for about 4 hours, come in and unclamp it, and measure the amount of fluid that comes out. If it's a small amount, then the fluid is moving on through the intestine and she can most likely start feeds. I have no clue what it means if there is a large amount of fluid. No one said. In the meantime, they didn't clamp it and no one came in to clamp it, so I went ahead and clamped it myself. If that's what the doctor wanted, why did she not just click the clamp while she was standing there playing with it?
Anyway, we are going on 60 hours with absolutely zero calories. She is getting fluid through her IV to keep her hydrated, but she is starting to wither away, literally. I know she is normally on the "puffy" side, but she is looking so skinny right now. I'm trying to vent this out of my system enough to get the guts to talk to the resident about all of my concerns without being emotional about it. It seems to be helping, so we'll see how it goes from here...

4 comments:

Anonymous said...

Cheer up Julie! Ill come down there and beat them up. :) Sometimes it takes a couple days before we feed them. No worries, Livvy Lou will catch up on her calories before we know it. If I can step away I wanna come see the princess. Head up! If there is anything I can do, let me know
Dana-PICU RN

Judy said...

Hang in there! I've been painting our family room today (ugh) and praying for your sweetie!

Crystal Montgomery said...

Never ever feel like you are "in the way" or "bugging the doctors". Your child is your job. I'm sure by now you know that you are your child's best advocate. If you feel that she is being overlooked then I'm sure she is. Start squeaking and you'll get the grease you need :)

Anonymous said...

When you have a moment, read Psalm 139, and these verses just before it in Psalm 138: Though I walk in the midst of trouble, you preserve my life; you stretch out your hand....with your right hand you save me. The Lord will fulfill his purpose..your love, O Lord, endures forever--do not abandon the works of your hands.

We are praying for you and your beautiful work of God!
Sally