Sunday, May 25, 2008

From the Beginning (Part One)

Since we have had so many new people joining our blog, I thought I would share Olivia's beginning. Many of you have heard her story many times, but I think it's a miracle story that helps explain a little bit of where we get our strength and courage.

Back in January of 2006, we found out baby #3 would be joining us in early September. Things were going great and in April, we went in for an ultrasound. We took the kids so they could see their new little baby, too. When they escorted the kids out for suckers and brought in the doctor (we were seeing a midwife), we knew something was up. The doctor told us that the baby had something called cystic hygroma. This was a growth that was on the back of the neck. In all the cases she had seen, the baby hadn't made it. She referred us to Peoria for confirmation.

We started seeing a perinatologist in Peoria for 3-D ultrasounds. The first visit confirmed the doctors thoughts. The perinatologist did ask if we wanted to consider terminating the pregnancy since the chances were slim that the baby would make it at all. With our immediate "no," he said he would continue to monitor the baby and pray for us. He had seen a handful of babies that did survive during his many years of practice. In most cases, the baby died in utero from congestive heart failure from trying to fight off the cystic hygroma. Even if the baby were to somehow make it to term, there was a 50/50 chance for some sort of chromosomal disorder, Turner's syndrome, and many other complications.

This is when the first of the miracles happened. We were at a loss. We were spending the first few days just waiting to lose her. What else could we do, but put our baby into the Lord's hands.

For you created my inmost being;
you knit me together in my mother's womb.
I praise you because I am fearfully and wonderfully made;
your works are wonderful, I know that full well.
My frame was not hidden from you
when I was made in the secret place.
When I was woven together in the depths of the earth,
your eyes saw my unformed body.
All the days ordained for me
were written in your book
before one of them came to be.
Psalm 139: 13-16
We would visit Peoria once every 2-4 weeks. For the first 3 or 4 visits, it was the same. No change. During the ultrasounds, the doctor would not speak to us, but would relay notes to the nurse and discuss his findings with us afterwards. In our June appointment, when he was dictating to his nurse, I swore I heard him say: cystic hygroma has dissipated. I'm no Einstein, but dissipated sounds a lot like disappeared. This is where the second miracle happened.
The cystic hygroma was gone.
The heart didn't look quite normal, so we were sent to Olivia's current cardiologist for an ultrasound of the baby. The baby was then diagnosed with AtrioVentricular Septal Defect. It would be repaired after the baby were born - hopefully at about 3-4 months of age. We could otherwise continue on with a "normal" pregnancy. We were discharged by the perinatologist and sent to a high-risk OB in Peoria because of the heart defect.
Fast forward to August 2006. We were scheduled to be induced on August 28. This way we could be sure to be in Peoria with all the necessary medical staff present for the baby's arrival. On August 27, we first learned that our baby was going to have a mind of it's own...
I'll have to post part 2 later - this is getting to be a long story.
As you can see, we did put Olivia in the Lord's hands long before she was born. Everyone wonders how we handle these things - how we take the bad news with a sense of ease. Often times, I would love to wear a big sign that says "I really do care what you are telling me, but the Lord is in charge and we are just waiting to see where His plan takes us next. " He holds Olivia in the palm of His hand. She has never been alone in this, and neither have we.

3 comments:

Anonymous said...

Julie, Olivia and family,
You've been in our prayers since we found out everything at MOPS. Your in my thoughts and prayers everday. God gives us strength when we think he knows we need it. My heart goes out to you and your family. St. Judes is a wonderful place to be. You probably haven't had time to think about this, but St. Judes will pay for your transportation, meals and lodging. Just a little something to ease your mind.
God bless, Angela King

Anonymous said...

Julie,
Here's my question for the day, has Olivia had Leukemia since February when they first tested her bone marrow? If I remember right they weren't able to get to the meaty part of the bone (I'm sure that's the technical term). I wonder if that's been her blood issues this whole time. That's my Dr. Mom assessment ;-)


I hope Olivia had a good day today & tomorrow will go by quickly so you can cross at least one big medical procedure off the list.

Praying Continually,
Kristen

Anonymous said...

Dear friends,
Although I had not been able to check in on your blogg for a couple of days, my family has worked hard to keep me informed on Olivia's prognosis. It has seems that I have been aware that God had special plans for Olivia from the very beginning. Although you families were close, Olivia has brought them closer and has enlarged the circle of family. I thought that you would enjoy hearing this: I often check your blog at school, first thing in the morning. Your family photos are usually up on the screen as the children come into the classroom, and of course, they were curious about you all. The children now come into the room and ask how the baby is .........I know many of them have added their voices to the prayers being sent up by us all.

Julie & Zac, we all know from where comes your strength. What I don't think you fully realize, is the impact you have had on bringing others to HIM.

Mike and Linda