Tuesday, April 28, 2009

Our beautiful baby!

Olivia had a really good night. She does seem to be a little bit awake under her paralytic, so they are trying to find something...anything...that will keep her more sedated.



I am not really good with explaining the whole trach thing, but here is what I know:


The trach will not help nor hinder her pulmonary hypertension. We decided to go with the trach, because it is, most likely, the only way we will get her home. She is not tolerating weaning down on the ventilator and she really needs her medications for her pulmonary hypertension. Two of her medications can only be administered through a vent. With her trach, she can go home on a vent. It will require 24 hour nursing care, so we are taking that into consideration now as we house hunt. It will definitely be a life change, but it will also allow us to be a family again. The trach is one step closer to home, however, it's a 6-8 week process to get your house approved and ready for her to be released. The fact that we technically don't have a home also throws a glitch into it. We'll just cross that bridge when we come to it.


So, as far as how the trach will help her...it will get her home, it will help respiratory-wise, and she'll never have to be intubated again! Any questions?


I'll leave you with this beautiful face...
And this one...

10 comments:

The Malcolm Family said...

Julie,
I can only imagine the stress that you are facing right now. I am so glad your showing pictures of Olivia she is such a beautiful little girl.
I continue to pray for you all daily. :)

Anonymous said...

Continued prayers are being sent your way. You have a beautiful baby girl....

Anonymous said...

Oh what a sweet little angel! I am sooo happy all went well with her surgery. It will be wonderful for you all to be together again soon! Best of luck house hunting!! :-)
Kara

The Hawkinson Gang said...

Oh my goodness...I think that is only the second time I have seen that beautiful face without her tubes...Thanks Julie!

Claire said...

Yay Olivia! Such a poppet.

Cxx

Anonymous said...

She is a beautiful girl!
Mary G

Brennan Blog said...

We are praying! What a sweet face....

Diny said...

Julie: By now your lips surely need some ChapStik from all the kisses you've landed on that cute tube-less face of Olivia! I can't get over her cute little chinny chin chin! Keep the pictures coming. God's grace is truly amazing! Thank you, Jesus, for loving us all, especially Olivia and her family.
Diny

Anonymous said...

What a precious face to be the last thing you see at night and the first thing you see in the morning. Praying that things go smoothly and you will soon be seeing that face as a family of 5!

~Katie said...

I love your blog and your baby... Lots of prayers coming your way to lift you up.